THE STARTING POINT FOR ACTION
Important updated information about our campaign to tighten DNR rules.
New: The Healthcare Analytics Group at The Center for Patient Protection
Kathleen Finlay quoted in Medscape article.
Kathleen Finlay quoted in The National Post.
Check out our popular new patient and family guide: 3 R's for Safer Care NOW. It's what you need so the risk of problems can be reduced.
Will the new IOM report on diagnostic errors really make a difference to patients and families in their struggle to avoid medical mistakes and emotional harm?
Helping the best providers to maximize the benefit of our Patient and Family Engagement Trigger Tool.
Working with patients, families, healthcare providers and experts in building a new paradigm for patient and family engagement.
Working with patients and families who report hospital incidents to us and creating more snapshots of avoidable medical and emotional harm.
"We can't afford a healthcare system that delivers so much avoidable harm."
The Center for Patient Protection is an unrelenting champion of safer care and more positive outcomes for patients and families in the hospital setting.
Founded by Kathleen Finlay following her elderly mother's life-shattering encounter with medical errors and breakdowns in care, and driven by the devastating hospital experiences of other patients and families around the world, The Center for Patient Protection was formed to combat what has become the third leading cause of death in the United States and Canada. Medical errors and hospital-acquired infections claim thousands of lives each year, leave millions injured and add unnecessary billions to the costs of healthcare. We are strongly committed to the belief that the scale and impact of this challenge requires a bolder, more forthright approach on the part of lawmakers, healthcare providers and all of us who have a stake in safe, affordable and accountable healthcare.
As an independent, non-profit advocate for change, The Center for Patient Protection works to build public awareness, promote more robust patient- and family-centered practices and encourage the best providers to create more transparent and compassionate healthcare cultures that strengthen patient safety and reduce emotional harm. Our flagship campaign, Keep Me Safe — Make Patient Protection 1st, is a major step in reaching these goals. More about us...
A safe patient is an informed patient. In healthcare, having the right information can mean the difference between life and death. What few patients and families know is that medical errors and infections in the hospital setting are the third leading cause of death in the United States and Canada. Taking up to 500,000 lives a year, hospital harm claims more lives in both countries than strokes, Alzheimer’s, breast cancer, kidney disease and automobile accidents combined. You’ve heard plenty about those causes of death over the years. Chances are you’ve heard very little about hospital harm. Yet in the U.S., studies have shown that one-in-three patients will face a mistake during their hospitalization, which can range from a medication error or a fall to a surgical blunder or hospital-acquired infection. Some of these mistakes can be corrected; some have more lasting consequences. Some lead to permanent disability, which was the case with the mother of The Center’s founder. And some lead to death.
Many patients and families we have spoken with over the years have expressed the shared feeling that if only they had known about the risks of hospital harm, they would have been more vigilant, more questioning and more engaged. Too many family members have found themselves haunted by remorse and anger that they were not better informed and more persistent in demanding the attention a loved one required. Don’t let you or your family be among them.
Learn about the risks that can face a patient in the hospital. Understand your rights to be fully engaged in your care or a loved one’s. Know what to do if harm occurs. Explore the issues on our website. Follow the links to recommended resources and further reading. View the videos we have collected. Above all, don’t take anything for granted. Being a safe patient, or a caregiving family member, in a hospital today can be a full-time job. Know the toll it can take. Be prepared for the challenge that lies ahead.
For the most part, our hospitals are marvelous places of healing and care. Just be aware that things can go wrong. Being informed can help reduce that risk.
A safe patient is an engaged patient. In fact, patient and family engagement is considered the gold standard in safe hospital care. It puts the patient at the very center of the care team. It recognizes that he or she has the right to be informed and consulted about every phase of care and to be treated with respect and compassion. It supports the vital role that families play when a loved one is hospitalized and structures hospital policies, like unrestricted visiting hours, to reflect that reality.
To stay safe, patients and families need to be vigilant, ask questions and be ready to act if things don’t seem right. True patient and family engagement has consistently been shown to contribute to more positive outcomes for patients and families. You should look on the provider’s website for more information about where it stands on both patient-centered care and patient and family engagement.
Keep a comprehensive journal of your hospital stay, or your loved one’s, from start to finish. If you’re a family member, make sure you have it with you while visiting. Make detailed notes about the care that is being provided, as well as any significant conversations and interactions with healthcare professionals or hospital administrators. Always make sure to get their name and occupation or position in the hospital. Medical records (which include, for example, doctor’s orders, progress notes, medication administration charts and test results) don’t always tell the whole story when it comes to hospital harm. Vital information may be left out. If you have your own accurate record, that can help in forcing proper disclosure and accountability. Make sure you know about the provider’s complaint process and the means of escalating concerns if you feel you are not being listened to or signs of deterioration are occurring in the patient’s condition without adequate explanation or attention.
Your engagement as a patient or family member is key to keeping safe. We have created a number of tools and resources on this site to help you in that mission. You may wish to look at our take on what patients and families want in their hospital experience. This is what we have been consistently told by patients and families around the world. It is the cornerstone of hospital practices that are patient and family engagement-friendly.
But even if you’re not a patient or a family member, you have a stake in stopping this deadly, and costly, epidemic of harm. One way or another, we all pay the costs of medical errors — as patients and families, consumers, employers and taxpayers. If we’re lucky, we’ll just pay in higher health insurance premiums and increased taxes. Medical errors in hospitals add tens of billions of dollars to healthcare bills every year. Some actuarial experts have put the total figure, including direct and indirect costs, at closer to one trillion dollars annually. But the sad fact is that too many of us pay for this avoidable epidemic with much more than higher insurance premiums and tax bills. We pay for it with the lives of our loved ones and the devastation of our families.
Take a look at our projects and causes. Become a champion of patient safety yourself. Let us know how you would like to help. If you have a story about medical harm, consider sharing it. Help promote our campaign to make Patient Protection 1st℠ on your website or blog, or on Twitter, Facebook and other social media. Tell us about your ideas to end the epidemic of hospital harm and how we can improve our message.
Together, we can shine a disinfecting spotlight where it belongs: on the devastation caused by the epidemic of hospital harm and the steps needed to end it — starting with what works best for patients and families, and by making Patient Protection 1st℠ in every aspect of care.
A safe patient is a protected patient. But you need to take steps as a patient or family member to ensure that protection.
Let your healthcare professionals know that you expect them to follow every means to keep you safe. Ask questions and speak up if you have any doubts about what is happening. If you see something or feel something that does not seem right, say something.
Knowing some key realities of hospital care today can help you or a family member to minimize the risk of harm. The first, which many patients and families do not know, is that medical errors and infections occur in hospitals every day. They claim thousands of lives in the United States and Canada each year and leave many times that number injured. In fact, hospital harm is the third leading cause of death in the U.S. and Canada. Most of this harm is avoidable.
You need to be especially alert to the risk of infections in hospitals (which take more than 100,000 lives among U.S. and Canadian patients every year), as well as the danger of falls, pressure ulcers, surgical mishaps and medication errors. Most hospitals know what the best practices are for reducing these risks. You may wish to have a discussion with your clinical care team members about what they are doing to minimize them in your case. You can find more information below.
We have included a number of resources, including videos, on this site to help keep patients protected and to help families and providers to make patient protection first. Here are some other helpful links.
You can also check out our Ten Reasons for Making Patient Protection 1st(SM), which sets out the kind of care you are entitled to expect and the best providers always deliver.
When it comes right down to it, no patient or family can ever be expected to know all the steps that can and should be taken in their care; but they can and should expect that healthcare workers and professionals do and will. Nor can they know all the evidenced-based recommendations and best practices that should be followed for their safety; but they are entitled to rely upon providers and professionals to follow them.
Making sure that more patients and families insist upon a safer healthcare culture, and more providers respond to that call, is the driving force behind the creation of The Center for Patient Protection and its campaign to make Patient Protection 1st℠.
What do patients and families want when it comes to healthcare, and, especially, during a hospital stay? The Center for Patient Protection believes that is a question that needs to occupy the attention of more healthcare providers and professionals.
We spoke with patients and families around the world, sought the views of renowned experts, and studied thousands of pages of patient safety literature in the field. When it comes right down to it, what patients and families want is really quite simple. Above all, they want patient safety, first, last and always. More ...
Why Patients and Families Need Patient Protection 1stSM
Reason # 10
It’s not just a patient in that bed. It's a sacred trust.
Reason # 9
Hospital-acquired infections never send a calling card before they show up in a patient’s room. But patients and families will always know after they’ve arrived.
The Center is guided in everything we do by what we call The Lorraine Finlay Healing Healthcare Virtues℠ of Prudence, Hope, Respect, Compassion, Patience, Diligence, Integrity, Openness, Fairness, Kindness towards all. They are named after the mother of The Center's founder, who experienced more documented medical errors during her six-month hospitalization than any patient in the history of patient safety literature. These are the values that personal experience, research and conversations with patients and families around the world have told us are pivotal in delivering safer, more affirming care. Read full story...
A Regular Series that Looks at the Most Common Forms of Medical Injury
Confusing, inconsistent and frequently opaque hospital DNR practices lead to tragic medical errors and needless family distress. They need serious reform and strong consequences when the wishes of family members are ignored. Read more....
Of all the serious types of hospital harm, pressure ulcers form the largest single category. They injure more than 2.5 million patients in U.S. and Canadian hospitals each year, Read more...
It’s time for a top-to-bottom review of just how user-friendly and fair our healthcare complaint bodies really are. You expect that casinos are going to be slanted in favor of the house. But you don’t imagine those kind of odds when it comes to complaints about hospitals and healthcare providers that may have caused […]
Deaths from medical mistakes occur one patient at a time. Yet, taken together in Canada, they are the equivalent of a large city bus full of passengers crashing and killing everyone on board every day of the year. So why is there so little focus on this epidemic of harm? The wonders of the Canadian […]
It should be no more acceptable to encounter an absence of compassion, kindness and respect in the healthcare setting than it is to buy a new car and discover they forgot to include the brakes. Yet it happens to patients and families everyday around the world, along with the emotional harm it unleashes. (Published in […]
The prognosis for the IOM’s newest bombshell on diagnostic errors is not encouraging. Its first report in 1999 on medical errors promised a 50 percent reduction in 5 years. Since then the number of deaths has soared to the point where hospital harm is the third leading cause of death in the U.S. and Canada. […]
More than a decade late and half the size of the U.S. version, Canada’s hospital “never” list falls short in giving patients and families the protection they need (Published in The Huffington Post, September 23, 2015) As of last Friday, sawing off the wrong limb became a “never” event in Canada. It’s one of 15 incidents the Canadian Patient Safety Institute and Health […]
(Published in The Huffington Post, September 15, 2015) Please see editors note below. International Suicide Prevention Day came and went last week. But it’s hard to know whether most hospitals noticed it, or how well they are doing in combating self-harm by their patients. How hospitals handle mental health issues can have serious consequences. One winter night […]