Introducing 21st Century Patient- and Family-Led EngagementSM

A breakthrough approach that captures patient and family experiences to reduce the causes of avoidable medical errors and related emotional harms that devastate millions each year. (Read More...)

Newest from The Huffington Post

Those most affected by the hospital experience are often the ones most ignored when it comes to learning about medical errors and their emotional consequences. (Read More...)

 

3Rs for Safer Care NOW

A critical guide for patients and families in the hospital setting. (MORE)

The Center for Patient  Protection is an unrelenting champion of safer, more compassionate care for patients and families in the hospital setting and for capturing the wisdom of their voices and experiences in combating avoidable medical errors, reducing the emotional harm that accompanies them and for building a 21st century model for patient- and family-led engagementSM.  We work with patients and families struggling to deal with the trauma of hospital harms, help high-performing providers use teachable patient and family lessons to deliver more healing cultures, and collaborate with healthcare leaders, policy makers and the media to promote safe, transparent and accountable care for everyone.

Founded by Kathleen Finlay following her elderly mother's devastating encounter with avoidable medical errors and breakdowns in care, and driven by the similar experiences of countless patients and families around the world, The Center for Patient Protection was created to combat what has become the third leading cause of death in the United States and Canada. Preventable medical errors and hospital-acquired infections claim thousands of lives each year, leave millions injured and emotionally traumatized and add unnecessary billions to the costs of healthcare systems.  

Through our unique online outreach clinic, The Center for Patient Protection has helped thousands of patients and families deal with the impact of medical errors and their emotional consequences. It is through these interactions that The Center has captured the important teachable lessons of their experiences, which we believe holds significant promise for building true 21st century patient- and family-led engagement.  More about The Center..

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  1. Become Informed

    Become Informed

    A safe patient is an informed patient. In healthcare, having the right information can mean the difference between life and death. What few patients and families know is that medical errors and infections in the hospital setting are the third leading cause of death in the United States and Canada.  Taking hundreds of thousands of lives each year, hospital harm claims more lives in both countries than strokes, Alzheimer’s, breast cancer, kidney disease and automobile accidents combined.  You’ve heard plenty about those causes of death over the years.  Chances are you’ve heard very little about hospital harm.  Yet in the U.S., studies have shown that one-in-three patients will face a mistake during their hospitalization, which can range from a medication error or a fall to a surgical blunder or hospital-acquired infection. Some of these mistakes can be corrected; some have more lasting consequences.  Some lead to permanent disability, which was the case with the mother of The Center’s founder.  And some lead to death.

    Many patients and families we have spoken with over the years have expressed the shared feeling that if only they had known about the risks of hospital harm, they would have been more vigilant, more questioning and more engaged. Too many family members have found themselves haunted by remorse and anger that they were not better informed and more persistent in demanding the attention a loved one required.  Don’t let you or your family be among them.

    Learn about the risks that can face a patient in the hospital. Understand your rights to be fully engaged in your care or in a loved one’s. Know what to do if harm occurs.  Explore the issues on our website.  Follow the links to recommended resources and further reading.  View the videos we have collected. Above all, don’t take anything for granted. Being a safe patient, or a caregiving family member, in a hospital today can be a full-time job. Know the toll it can take.  Be prepared for the challenge that lies ahead.  

    For the most part, our hospitals are marvelous places of healing and care.  Just be aware that things can go wrong.  Being informed can help reduce that risk.

     

     

     

  2. Become Engaged

    Become Engaged

    A safe patient is an engaged patient.  In fact, patient and family engagement is considered the gold standard in safe hospital care.  It puts the patient at the very center of the care team. It recognizes that he or she has the right to be informed and consulted about every phase of care and to be treated with respect and compassion. It supports the vital role that families play when a loved one is hospitalized and it structures hospital policies, like unrestricted visiting hours, to reflect that reality.  

    To stay safe, patients and families need to be vigilant, ask questions and be ready to act if things don’t seem right. True patient and family engagement has consistently been shown to contribute to more positive outcomes for patients and families. You should look on the provider’s website for more information about where it stands on both patient-centered care and patient and family engagement.  

    Keep a com­pre­hen­sive jour­nal of your hospital stay, or your loved one’s, from start to fin­ish.  If you’re a family member, make sure you have it with you while vis­it­ing. Make detailed notes about the care that is being provided, as well as any significant conversations and interactions with healthcare professionals or hospital administrators.  Always make sure to get their name and occupation or position in the hospital.  Med­ical records (which include, for example, doctor’s orders, progress notes, medication administration charts and test results) don’t always tell the whole story when it comes to hos­pi­tal harm. Vital infor­ma­tion may be left out. If you have your own accu­rate record, that can help in forc­ing proper dis­clo­sure and accountability.  Make sure you know about the provider’s complaint process and the means of escalating concerns if you feel you are not being listened to or signs of deterioration are occurring in the patient’s condition without adequate explanation or attention.

    Your engagement as a patient or family member is key to keeping safe.  We have created a number of tools and resources on this site to help you in that mission.  You may wish to look at our take on what patients and families want in their hospital experience. This is what we have been consistently told by patients and families around the world.  It is also the cornerstone of hospital practices that are patient and family engagement-friendly. 

    But even if you’re not a patient or a family member, you have a stake in stopping this deadly, and costly, epidemic of harm. One way or another, we all pay the costs of medical errors — as patients and families, consumers, employers and taxpayers.  If we’re lucky, we’ll just pay in higher health insurance premiums and increased taxes. Medical errors in hospitals add tens of billions of dollars to healthcare bills every year.  Some actuarial experts have put the total figure, including direct and indirect costs, at closer to one trillion dollars annually. But the sad fact is that too many of us pay for this avoidable epidemic with much more than higher insurance premiums and tax bills.  We pay for it with the lives of our loved ones and the devastation of our families.  

    Take a look at our projects and causes. Become a champion of patient safety yourself. Let us know how you would like to help. If you have a story about medical harm, consider sharing it.  Help promote our campaign to make Patient  Protection 1stSM  on your website or blog, or on Twitter, Facebook and other social media.  Tell us about your ideas to end the epidemic of hospital harm and how we can improve our message.

    Together, we can shine a disinfecting spotlight where it belongs: on the devastation caused by the epidemic of hospital harm and the steps needed to end it — starting with what works best for patients and families, and by making Patient Protection 1stSM in every aspect of care.

     

     

     

  3. Become Protected

    Become Protected

    A safe patient is a protected patient.  But you need to take steps as a patient or family member to ensure that protection.

    Let your healthcare professionals know that you expect them to follow every means to keep you safe. Ask questions and speak up if you have any doubts about what is happening. If you see something or feel something that does not seem right, say something.  

    Knowing some key realities of hospital care today can help you or a family member to minimize the risk of harm. The first, which many patients and families do not know, is that medical errors and infections occur in hospitals every day.  They claim hundreds of thousands of lives in the United States and Canada each year and leave many times that number injured.  In fact, hospital harm is the third leading cause of death in the U.S. and Canada.  Most of this harm is avoidable. 

    You need to be especially alert to the risk of infections in hospitals (which take more than 100,000 lives among U.S. and Canadian patients every year), as well as the dangers of falls, pressure ulcers, surgical mishaps and medication errors. Most hospitals know what the best practices are for reducing these risks. You may wish to have a discussion with your clinical care team members about what they are doing to minimize them in your case. You can find more information below.

    We have provided a number of resources, including videos, on this site to help keep patients protected and to help families and providers make patient protection first.  Here are some other helpful links.   

    You can also check out our Ten Reasons for Making Patient  Protection 1stSM, which sets out the kind of care you are entitled to expect and the best providers always deliver.

    When it comes right down to it, no patient or family can ever be expected to know all the steps that can and should be taken in their care; but they can and should expect that healthcare workers and professionals do and will.  Nor can they know all the evidenced-based recommendations and best practices that should be followed for their safety; but they are entitled to rely upon providers and professionals to follow them.  

    Making sure that more patients and families insist upon a safer healthcare culture, and more providers respond to that call, is the driving force behind the creation of The Center for Patient  Protection and its campaign to make Patient  Protection 1stSM.

      

DNR

See our NEW DNR Section  

The definitive guide for patients and families and a powerful learning tool for healthcare providers and clinicians looking to reduce medical errors and risks in this critical area of patient care.

What Do Patients and Families Want?

What do patients and families want when it comes to healthcare, and, especially, during a hospital stay? The Center for Patient  Protection believes that is a question that needs to occupy the attention of more healthcare providers and professionals. 

We spoke with patients and families around the world, sought the views of renowned experts, and studied thousands of pages of patient safety literature in the field.  When it comes right down to it, what patients and families want is really quite simple. Above all, they want patient safety, first, last and always.  (MORE)

 

Deny and Defend Culture Weakens Trust in Healthcare System

(Published in The Huffington Post) On a late Sun­day night one recent long week­end, I was urgently con­tacted by a fam­ily who was dis­tressed over the treat­ment their elderly father was receiv­ing in the hos­pi­tal. I oper­ate an online out­reach clinic for patients and fam­i­lies through The Cen­ter for Patient Pro­tec­tion. It has helped thou­sands over the years nav­i­gate their way toward safer care and deal with the emo­tional trauma of med­ical errors when they occur. (MORE)

Our Top 10 List

Why Patients and Families Need Patient Protection 1stSM

Reason # 10

It’s not just a patient in that bed. It's a sacred trust.

Reason # 9

Hospital-acquired infections never send a calling card before they show up in a patient’s room. But patients and families will always know after they’ve arrived.

(MORE)

Our Healthcare Systems Need a Strong Dose of Compassion

(Published in The Huffington Post) Kindness and compassion have been shown to produce positive outcomes in the hospital setting.  So why do so many patients and families say it was missing in the care they received? (MORE)

 

From Hospital Harm to Healing Virtues

 

Lorraine Finlay Healing Healthcare Virtues(sm)The Cen­ter is guided in every­thing we do by what we call The Lor­raine Fin­lay  Heal­ing Health­care Virtues of Pru­dence, Hope, Respect, Com­pas­sion, Patience, Dili­gence, Integrity, Open­ness, Fair­ness, Kind­ness towards all. They are named after the mother of The Center's founder, who experienced more documented medical errors during her six-month hospitalization than any patient in the history of patient safety literature. These are the val­ues that per­sonal expe­ri­ence, research and con­ver­sa­tions with patients and fam­i­lies around the world have told us are piv­otal in deliv­er­ing safer, more affirm­ing care. Read full story...

 

Read Our Snapshots of Hospital Harm

See more snapshots of harm...