Introducing 21st Century Patient- and Family-Led Engagement

Intro­duc­ing 21st Cen­tu­ry Patient- and Family-Led Engage­mentSM

A break­through patient- and family-based approach to reduc­ing the caus­es of avoid­able med­ical errors and relat­ed emo­tion­al harms that dev­as­tate mil­lions every year.

The Cen­ter for Patient  Pro­tec­tion is pleased to announce a new weapon in the arse­nal to reduce med­ical errors and relat­ed harms in the hos­pi­tal set­ting. Cre­at­ed out of the expe­ri­ences of thou­sands of patients and fam­i­lies who have shared their sto­ries with us over the years, our 21st Cen­tu­ry Patient- and Family-Led Engage­mentSM is a ground-breaking step in the evo­lu­tion of patient- and family-centered care.

Orig­i­nal­ly devel­oped in the 1990s, the con­cept of patient-and family-centered care has made impor­tant inroads in rec­og­niz­ing patients and fam­i­lies as cen­tral part­ners with the health­care team and who play a vital role in achiev­ing suc­cess­ful out­comes. But we believe it is time to advance this con­cept fur­ther, espe­cial­ly in the light of avail­able infor­ma­tion about real-time adverse expe­ri­ences in the hos­pi­tal set­ting and the still unmit­i­gat­ed risk of med­ical errors and infec­tions which claim hun­dreds of thou­sands of lives every year and leave count­less oth­ers emo­tion­al­ly dev­as­tat­ed.

At the heart of our mod­el for 21st Cen­tu­ry Patient- and Family-Led Engage­mentSM is the idea that patients and fam­i­lies need both crit­i­cal infor­ma­tion about the risks they face and clin­i­cal sup­port that rec­og­nizes the most com­mon bar­ri­ers to safe and emo­tion­al­ly affirm­ing care — the same bar­ri­ers they report time and time again. Our mod­el offers health­care providers the tools and resources that allow them to direct­ly deliv­er the kind of informed care patients and fam­i­lies require in all phas­es of their clin­i­cal inter­ac­tions ⎯ and in real time.

At the heart of our mod­el for 21st Cen­tu­ry Patient- and Family-Led Engage­mentSM is the idea that patients and fam­i­lies need crit­i­cal infor­ma­tion about the risks they face and clin­i­cal sup­port that rec­og­nizes the most com­mon bar­ri­ers to safe and emo­tion­al­ly affirm­ing care — the same bar­ri­ers they report time and time again.

Our tools and resources work because they are devel­oped from the strong­ly voiced nar­ra­tives of patients and fam­i­lies. It is wide­ly rec­og­nized that the shared expe­ri­ences of patients and fam­i­lies are fre­quent­ly the most com­pelling and per­sua­sive of all reports involv­ing hos­pi­tal stays, and that they often cap­ture inci­dents that go unre­port­ed in offi­cial clin­i­cal records.

Over the years, patients and fam­i­lies, through the online out­reach clin­ic of The Cen­ter for Patient  Pro­tec­tion, have shared the expe­ri­ences that most con­cern them when it comes to break­downs in care involv­ing med­ical errors and oth­er fail­ures. Too often, those break­downs are accom­pa­nied by dev­as­tat­ing waves of emo­tion­al harm that last for years, along with feel­ings of iso­la­tion and aban­don­ment.

With the tools and teach­able lessons that have been derived by cap­tur­ing these expe­ri­ences, we believe patients and fam­i­lies are bet­ter able to pro­tect them­selves in the hos­pi­tal and providers are more strong­ly posi­tioned to deliv­er the safer and more heal­ing cul­ture that patients and fam­i­lies need and expect.

If you are a high-performing provider inter­est­ed in explor­ing the promise of our new mod­el for 21st Cen­tu­ry Patient- and Family-Led Engage­mentSM, please con­tact Kath­leen Fin­lay, founder and CEOThe Cen­ter for Patient  Pro­tec­tion.