• Women are more likely than men to suffer from multiple, co-occurring, chronic conditions such as chronic pain, heart disease and diabetes.
• Women suffer from mental health conditions such as depression, anxiety and trauma significantly more than men, yet face more barriers to accessing healthcare services.
• Social determinants of health, including factors like income, employment status and housing, all influence a person’s risk for disease or injury and women are even more vulnerable to these effects.
(Source: Women’s College Hospital)
A Call to End Life-Threatening Barriers to Effective Healthcare for Women
There is a gigantic imbalance in the equation between the healthcare women need and the healthcare we receive. It is placing too many women at risk of avoidable pain, chronic disease and early death.
The research is persuasive. But nothing is more compelling than the voices of women who have reached out to The Center for Patient Protection over the years to share their heartfelt experiences with a dysfunctional healthcare system that leaves too many behind.
The relationship between women and healthcare providers is further complicated when factors such as age, caregiving, sexual violence and sexual harassment, as well as sexual abuse and misconduct at the hands of regulated health professionals, are introduced. Typically, the impact of these factors is felt disproportionately by women. The studies noted in the links all cite significant medical and emotional sequelae, many of which stem from inadequate care or circumstances that militate against women obtaining the care they need.
Gender-based gaps in care and treatment were frequently reported by victims of sexual violence and sexual harassment. Many have often recounted being shocked, and harmed, by the insensitive and inadequate care they received. A general lack of trauma-informed awareness displayed during clinical visits, especially at the primary physician level, was a disturbingly recurring theme. When women do not feel an adequate comfort zone and level of confidence in their interactions with healthcare professionals, they are less inclined to be fully candid.
Any barriers that contribute to a dysfunctional relationship or a breakdown in trust and communication in the healthcare setting are an open invitation to diagnostic errors. One study revealed a longer lag time for female patients between the onset of symptoms and actual diagnosis in six of 11 types of cancer.
There are harmful implications in other ways. One study found that women are 50 to 75 percent more likely to experience an adverse drug reaction than men.
The Safer Women Health Initiative™ was created by The Center for Patient Protection to raise awareness among healthcare professionals, policy makers, patients and the public about specific diagnostic, cultural and communication obstacles women face in obtaining adequate care.
The evidence-based statistics are borne out by the experience of The Center for Patient Protection. Over the years, whether they have been victims of medical errors or serious breakdowns in care involving themselves or family members, an overwhelming number of reporting parties to The Center and its outreach clinic have been women. The emotional impact of medical errors, and the wall of silence frequently encountered by loved ones seeking answers, has repeatedly been found to be a significant contributor to emotional and psychological trauma. Much of this falls on women.
The Safer Women Health Initiative™works with healthcare providers to eliminate the kind of systemic barriers to safer care that have been identified in the hundreds of patient and family experiences shared with The Center for Patient Protection and The ZeroNow Campaign since 2012.
We network with other stakeholders that have a proven interest in raising the bar for women’s healthcare.
Through The Center’s online outreach clinic, we work with the most vulnerable women to help them navigate through the web of obstacles and closed doors that thwart meaningful communications, transparency and accountability and which compromise access to the right kind of healthcare.
The Safer Women Health Initiative™ is collaborating with The ZeroNow Campaign’s HealingNow™, to advance awareness of the serious health risks associated with sexual violence and sexual harassment and the often devastating emotional and physical harm that can follow when women come forward and find themselves thrown into the jaws of institutional betrayal. Overwhelmingly, most incidents of sexual violence and related abuses occur against women. The level of harm associated with such incidents often cascades into serious emotional and medical complications. It is part of the unique healthcare DNA that defines women. It deserves to be targeted robustly for further action.
Clinical work by Dr. Jennifer Freyd in betrayal trauma theory led to the development of her concept of institutional betrayal. Her findings confirm that when a traumatic incident is followed by insensitive or abusive responses by trusted players like healthcare professionals, public institutions, government agencies, judges, private corporations or law enforcement authorities, the risk to a victim’s well-being rises sharply.
Depression, anxiety, PTSD, self-harm and adverse physical outcomes are among the recognized sequelae of betrayal trauma identified by Dr. Freyd. The high-profile deaths by suicide involving 19-year-old college freshman Lizzy Seeberg, to which Dr. Freyd refers in her research, and former RCMP constable Krista Carle, which I have written about, are a vivid, yet so heartbreaking, reminder of the catastrophic risks associated with institutional betrayal following sexual violence
As acclaimed Yale psychologist Joan Cook, Ph.D notes,
Research on the prevalence and effects of trauma is large and growing. However, most health care professionals, such as psychologists, still only have a cursory knowledge of this science and little to no formal training in evidence-based psychosocial treatments for trauma-related disorders.
Toronto’s Women’s College Hospital echoes a similar view of the gaps in healthcare for women, including those arising from sexual violence.
Half of all women in Canada have experienced at least one incident of physical or sexual violence since the age of 16, yet not all healthcare providers have the knowledge or skills to deliver sensitive care to these women.
This is part of a more general gender-based breakdown in care that can occur, according to WCH.
...many women are overlooked and underserved because healthcare has traditionally not considered the impact of sex and gender differences.
Women suffer from mental health conditions such as depression, anxiety and trauma significantly more than men, yet face more barriers to accessing healthcare services.
Women experience depression twice as often as men yet are three times more likely than men to experience barriers to accessing mental health care.
More alarming findings from WCH:
Women are more likely to report severe and long-lasting pain, but are typically treated less aggressively than men. Doctors approach women’s pain as psychological or psychosocial and are more likely to refer women to a therapist rather than a pain clinic.
Each year, heart disease kills more women than men but, only 35% of patients in heart disease research studies are women.
Research has shown that following a heart attack, women are 36 per cent less likely to enroll and participate in cardiac rehabilitation because it is not offered as an option to many women for a variety of reasons, including societal presumptions or cultural biases.
Here’s another shocker: stroke.
Stroke is the third leading cause of death for women (in comparison, stroke is the fifth leading cause of death for men). Each year, 55,000 more women have a stroke than men. Because in general women live longer than men, stroke will have a more negative impact on their lives. More women will:
- Live alone when they have a stroke
- Be more likely to live in a long term health care facility after a stroke
- Have a worse recovery after stroke
(Source: U.S. National Stroke Assocation)
Barriers to effective care for women, and harms produced by providers that are at times gender-biased, and at other times, oblivious to the unique gender-based issues that confront women, are the #MeToo equivalent in the healthcare system. Research supports the fact that these barriers and harms related to the care, or absence of it, for women occur in advanced-economy countries from Canada and the United States to the United Kingdom and Australia.
It is a challenge that cannot be met by silence or inaction; nor can it await the glacial pace of reform typically shown by healthcare policy makers.
In Canada, a good start at raising awareness would be for the Trudeau government to strike a national task force on gender-based barriers to safer healthcare for women. This would include everything from the low level of female participation in medical and healthcare research studies and the lower rate of referral for cardiac rehabilitation as compared with male counterparts to the woeful lack of trauma-informed training for healthcare professionals who treat the emotional and physical symptoms of victims of sexual violence and related abuses. The overwhelming majority of such victims are female.
When the national spotlight is focused on the expanse of these barriers, their shocking cost to women and their cost to the healthcare system, and when all the players are gathered around the table, the chances of reform are significant, and significantly greater than if the status quo persists.
If you are a healthcare provider or professional, a policy leader or an interested stakeholder — perhaps even a woman of influence and accomplishment who wants to continue making a big difference — please consider getting behind and supporting our new Safer Women Health Initiative™. You can contact Kathleen Finlay directly.
Women Short Changed by Healthcare Gender Gap
(City News article and video)
When Toxic Work Culture Adds to the Trauma of Sexual Misconduct
(Published in The Huffington Post)
Stop Sexual Misconduct from Being Fatal
(Published in The Times Colonist)
Deny and Defend Cultures Weakens Trust in Healthcare System
(Published in The Huffington Post)
Keep Ageism Out of the Hospital
(Published in The Huffington Post)
The Cost of Caregiving — To the Caregiver
(Published in The Huffington Post)
Age and Gender Variations in Cancer Diagnostic Intervals in 15 Cancers